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health26m ago
The Painful Truth About Long Covid
- New definitions for long Covid aim to include all who experience post-infection symptoms, broadening research but raising noise in data.
- Experts warn that overly broad criteria may hinder meaningful biomarker discovery and trial usefulness.
- Mind-body therapies attract patients and critics alike, with some reporting improvement while researchers call the evidence fragile.
- Patient advocates argue that believing patients is essential, even if it complicates scientific certainty about cures.
- Trial hurdles include IRB caution and fear of causing harm, sometimes stalling potentially promising studies.
- NIH and researchers acknowledge post-exertional malaise complicates, but does not rule out, graded exercise therapy and rehab.
- Journalistic and medical communities face threats and harassment when covering controversial long Covid therapies.
- Experts stress need for precise definitions to avoid mislabeling and ensure reliable trials.
- Personal stories illustrate both devastating impacts and recovery through nonpharmacological approaches.
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