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‘Is it cancer?’ I had to tell my son, ‘I don’t know.’ There’s no treatment. We were told go home and live life.’: Twin brother suffers 2 brainstem strokes caused by a cavernous angioma, mom says it’s made her children ‘kinder, better’
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‘Is it cancer?’ I had to tell my son, ‘I don’t know.’ There’s no treatment. We were told go home and live life.’: Twin brother suffers 2 brainstem strokes caused by a cavernous angioma, mom says it’s made her children ‘kinder, better’

  • Mother describes the moment doctors warned there was no immediate treatment and advised to go home and live life.
  • Zach suffered a second catastrophic brain bleed within 24 hours of returning home, worsening his condition.
  • The family connected with Angioma Alliance, seeking updates on unpublished research and later funded efforts.
  • The Zach Brown 5K fundraiser raised more than $100,000 for angioma research.
  • Zach underwent multiple surgeries and extensive rehabilitation, including eye surgeries and nerve grafts.
  • Zach shifted from athlete to advocate, becoming a volunteer and earning the Prudential Spirit of Community Award.
  • The family emphasizes resilience, choosing gratitude and hope despite the medical crisis.
  • Zach completed high school and planned to attend college, continuing his advocacy work.
  • The mother's ongoing advocacy aims to raise awareness and fund more research into treatments.
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