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Brisbane stylist Sarah Strozkiy shares son's terminal diagnosis
- Sonny Strozkiy, a two-year-old in Brisbane, has been diagnosed with Batten disease, a terminal genetic disorder.
- Strozkiy described the diagnosis in tears, detailing the disease's expected progression and life expectancy.
- Family plans brain surgery for Sonny to place a port, followed by ongoing infusions to slow progression.
- Donations to the family have surpassed $80,000 as supporters rally around Sonny and his mother.
- Sarah Strozkiy emphasized living in the present moment and remaining hopeful amid limited survival prospects.
- Strozkiy shared that there have been no survivors of Batten disease, underscoring the gravity of Sonny's condition.
- Strozkiy said she would continue to share Sonny's story in hopes of bringing light to their situation.
- Strozkiy abides by the family’s openness to every possible door and support offered.
- The article notes Batten disease can progress from seizures and speech delays to blindness and loss of movement.
- Strozkiy described Sonny’s personality as still happy and energetic despite the diagnosis.
- The piece references Sonny's upcoming July birthday and notes he turns three in July.
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