#1
#1 out of 153.9K est. views
health5h ago
I used AI to understand my mom's rare stage 4 cancer and advocate for her when doctors wouldn't
- A New Jersey caregiver built an AI-powered workflow that helped manage his mother's stage 4 cancer care and improve decision making.
- Desai used AI to read medical reports, identify misdiagnoses, and guide questions for tomorrow's appointments.
- He cites AI as saving his mother's life three times by prompting timely actions.
- The tool helped detect a pulmonary embolism and bleeding patterns after transfusions, prompting hospital visits.
- Desai emphasizes AI acted as a second opinion and coach alongside human doctors.
- He notes that AI can hallucinate, but argues the medical system should be graded the same way as AI.
- Desai aimed to keep the workflow simple and accessible, with a free offering.
- The approach helped his friend group stay informed and prepared for care decisions.
- Desai integrated Epic exports with NotebookLM and Claude to synthesize data and plan next steps.
- He frames AI-assisted care as a way to preserve time with family and say goodbyes with dignity.
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