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Woman Says ‘Nothing Could Have Prepared’ Her for the ‘Level of Suffering’ She Would Endure After Shocking Diagnosis (Exclusive)
- Meredith was officially diagnosed with a spinal CSF leak in August 2023 after years of migraines and testing.
- She now spends about 95% of each day lying down to control severe symptoms.
- Her treatment has included multiple blood patches and a brain stent as doctors seek to seal leaks.
- Connective tissue disorder complicates leaks, making sealing one leak often lead to another.
- The condition has severely impacted daily life, limiting work and social interaction.
- Meredith has adapted by doing tasks in bed and finding accessible ways to participate in life.
- Her wedding was held with accommodations that allowed her to lie down during the event.
- She has used TikTok to document her journey and advocate for awareness and research.
- Meredith emphasizes disability can affect anyone and calls for better treatments.
- PEOPLE reports Meredith’s story as part of a broader coverage on lifestyle and health.
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