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The Painful Truth About Long Covid
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health2h ago

The Painful Truth About Long Covid

  • New definitions for long Covid aim to include all who experience post-infection symptoms, broadening research but raising noise in data.
  • Experts warn that overly broad criteria may hinder meaningful biomarker discovery and trial usefulness.
  • Mind-body therapies attract patients and critics alike, with some reporting improvement while researchers call the evidence fragile.
  • Patient advocates argue that believing patients is essential, even if it complicates scientific certainty about cures.
  • Trial hurdles include IRB caution and fear of causing harm, sometimes stalling potentially promising studies.
  • NIH and researchers acknowledge post-exertional malaise complicates, but does not rule out, graded exercise therapy and rehab.
  • Journalistic and medical communities face threats and harassment when covering controversial long Covid therapies.
  • Experts stress need for precise definitions to avoid mislabeling and ensure reliable trials.
  • Personal stories illustrate both devastating impacts and recovery through nonpharmacological approaches.
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